'And I’ll feel heartbreak for not knowing what I know now to have helped him sooner. How many years has my son struggled? How hard has his life been because he couldn’t reach me?' My main takeaway for this week!
We have started down the possibility of psych issues with my son and all I can think is if this has been an issue all along and I didn't see it I suck and feel horrible. He can't tell us and I know that's just the journey, but sometimes I'm worried my fatigue got in the way of me getting it together and pushing harder for answers in certain areas of difficulty.
You been busy! (Bc you have totally not been busy prior to writing that, just coasting...haha I joke ;-)
Over here we are of a mindset that we must try all the things. Lemme rephrase: we ought to be open to trying things that anecdotally seem to work for families caring for children who appear to have similar profiles to our son. Lemme rephrase again. "We" meaning "I" and my wife then is like "Really? Another thing? How much it cost? Why? OK, I guess?"
I would love a spelling support community. I feel like the one I am part of is great, tho all RPM folks. Hot threads. Fire thumbs. Lots of bragging on the kiddos. Which is great but Whatsapp is one thing and real time convo with optional video on and valuable discussion is another.
Back to your share though, I appreciate knowing some of the detail and thought process behind why you are doing the things you do. I look forward to seeing how it all goes. As I do with our kiddo as well!
It is so easy for parents to feel remorse for not doing something in the past. But we can't ever go back and change it. Instead focus your energy on the present. And forgive yourself for not starting your current path sooner. At least you are doing it now.
I so wish I could have a do-over of my son’s childhood knowing what I know now. 💕 One thing I thought of sharing, in case it’s helpful, is I learned my son has a MTHFR gene variant that makes him unable to metabolize folic acid. So he needs a methylated version of it, as a supplement. It helps the nervous system. It’s so important that they add folic acid (the synthetic version, I think?) to almost all wheat flours, cereals, pasta, in our country. They may add it to fortified dairy in your country. We eat gluten free to avoid folic acid, not gluten. We had funding to pay for the pharmacogenetic test that revealed the gene variant. If you can swing it, and if avoiding wheat helps him, it could be worth it to test. Good luck! I’m cheering you all on!
Lots of good things this week, Tiffany 🔥🔥🔥
'And I’ll feel heartbreak for not knowing what I know now to have helped him sooner. How many years has my son struggled? How hard has his life been because he couldn’t reach me?' My main takeaway for this week!
We have started down the possibility of psych issues with my son and all I can think is if this has been an issue all along and I didn't see it I suck and feel horrible. He can't tell us and I know that's just the journey, but sometimes I'm worried my fatigue got in the way of me getting it together and pushing harder for answers in certain areas of difficulty.
Sigh.
You been busy! (Bc you have totally not been busy prior to writing that, just coasting...haha I joke ;-)
Over here we are of a mindset that we must try all the things. Lemme rephrase: we ought to be open to trying things that anecdotally seem to work for families caring for children who appear to have similar profiles to our son. Lemme rephrase again. "We" meaning "I" and my wife then is like "Really? Another thing? How much it cost? Why? OK, I guess?"
I would love a spelling support community. I feel like the one I am part of is great, tho all RPM folks. Hot threads. Fire thumbs. Lots of bragging on the kiddos. Which is great but Whatsapp is one thing and real time convo with optional video on and valuable discussion is another.
Back to your share though, I appreciate knowing some of the detail and thought process behind why you are doing the things you do. I look forward to seeing how it all goes. As I do with our kiddo as well!
It is so easy for parents to feel remorse for not doing something in the past. But we can't ever go back and change it. Instead focus your energy on the present. And forgive yourself for not starting your current path sooner. At least you are doing it now.
You are doing amazing! Keep it up mama!
I so wish I could have a do-over of my son’s childhood knowing what I know now. 💕 One thing I thought of sharing, in case it’s helpful, is I learned my son has a MTHFR gene variant that makes him unable to metabolize folic acid. So he needs a methylated version of it, as a supplement. It helps the nervous system. It’s so important that they add folic acid (the synthetic version, I think?) to almost all wheat flours, cereals, pasta, in our country. They may add it to fortified dairy in your country. We eat gluten free to avoid folic acid, not gluten. We had funding to pay for the pharmacogenetic test that revealed the gene variant. If you can swing it, and if avoiding wheat helps him, it could be worth it to test. Good luck! I’m cheering you all on!