I’m splitting this tiny hospital bed with my son, my right leg planted on the floor and my left trying to find a spot that doesn’t get tangled up in my son. He’s lying next to me but his body isn’t at rest. He’s watching me, waiting to see if I happen to move in a way that alerts him that I may be leaving the bed.
I'm sorry y'all are going through this. I'm sorry the system is this way (racist, ableist, capitalist, you name it). I'm glad he's getting care (?) and I'm glad you're there with him. I hope he gets what he needs. I hope you do, too! Take care.
You captured so much. Thank you. My daughter has high support needs and it’s so difficult to put into words even a tiny portion of the efforts, thoughts, feelings, and guesses that it takes to enter into her universe and give her the true accurate supports she needs. Emotionally. Physically. Spiritually. Communication. All the things and all the ways. Much love.
I'm sorry y'all are going through this. I'm sorry the system is this way (racist, ableist, capitalist, you name it). I'm glad he's getting care (?) and I'm glad you're there with him. I hope he gets what he needs. I hope you do, too! Take care.
You captured so much. Thank you. My daughter has high support needs and it’s so difficult to put into words even a tiny portion of the efforts, thoughts, feelings, and guesses that it takes to enter into her universe and give her the true accurate supports she needs. Emotionally. Physically. Spiritually. Communication. All the things and all the ways. Much love.