Wishing you restful sleep. There’s so much I wish I could say, but to write it all - to examine it from every angle, consider how it might be perceived by different audiences, balance my son’s interests in the process - there’s no space for that this morning, before an appointment in an hour and six minutes and everything that needs to happen in that time. But you go through that, the writing and processing and the internal and external feedback, all the while trying to also live your life and do all the things for your family and (insert endless list of many other things).
Sending hugs, solidarity, warmth. Acknowledging the need for the community you’re discussing. Acknowledging that you’re trying to create a space that somehow draws the ire of people when it deserves support and kindness and help.
There’s a lot of isolation in my bones, the stories I carry but can’t share, that some days I find myself crying in the middle of a meeting feeling my back and bones like chalk ready to crumble. Stories of love and fear and my son and my failures and my limits and things it would take days or weeks to pour out and explain. Those are the things I wish I could talk about, explain, find community in, but there’s nowhere to go for so many reasons.
I hope you’re able to build what you’re envisioning. It’s so necessary.
I truly hope you can get more sleep soon. Long nights when I can't sleep due to worries (conscious or subconscious) are familiar. Your sleeplessness may be from another cause.
Our family's struggles differ from yours yet the isolation sounds so similar. I have some personal questions that we've need community help with for years. Unfortunately, there isn't a safe space that wouldn't either reveal too much about my child or put me at risk of advice from people who might mean well, but don't have the same view of setting my child up for lifelong self-determination and bodily autonomy. If I can help in building this safe space (unfortunately without coding skills) I would love to volunteer time.
I wish for you some peace, and sleep. I would be open to a supportive community as well. A safe space to share, and get helpful information, but without it being pushed like it's the only way. I would also be willing to help set it up. Let me know if you would be interested.
I hope that you're able to find the peace your mind and heart need so badly. Thank you for sharing and being vulnerable with us in this space. Sending lots of warmth and love and big tight hugs (if you're a hugger).
I wish you all the rest and all the peace! What a difficult place you're in, and what light you shine for our community--and the two don't harmonize all that well, always, I know. Keep planning, keep sharing as you can, and I pray you get some sleep <3
I am holding sacred space for you and yours Tiffany. I resonate with your desire to create this kind of nuanced space and your struggle with isolation. I am game for it, in any way I can be. I hope you are able to take time to rest and get good sleep. Sleep has always been a challenge for me that was exacerbated when I had kids and my oldest struggles regularly. It makes a terrible impact and can be so hard to catch up!
To be worn down to the bone and in a dark place, yet still thinking of ways to make others feel less alone, makes you a special person. Not everyone deserves your full truth, but there are those in your life who are ready for the chance to meet you there.
I appreciate you sharing this. I can’t imagine what your experience is like (as my experience as an autistic individual and parents is very different). But - I get the struggle of trying to decide how much to share and how much to keep private. I also process things by writing (mine are mostly in a personal journal) and those writings help me feel not so alone - and sometimes help me figure out what I feel comfortable sharing. It’s an ongoing battle - and you need to do what’s right for you and your family first and foremost. But we are here to support you, no matter what you share. ❤️
I suspect I speak for more than just myself when I say that even without sharing details, those who are living this experience can fill in the blanks when it comes to what you are experiencing and feeling. You share so much that makes me feel heard and seen and I hope you know that you are heard and seen as well. Whether or not you share everything, those who know understand all too well.
Your writing has always just spoken to me, more so now. I am the mother of an autistic child and I so so want the type of community -need and pray for it ,a supportive, nonjudgmental community of people going through similar struggles who share things what are joyous, sometimes unexpectedly do, and ok to share when more challenging emotions arise, not necessarily obligating oneself to receive advice but to know that they’re being heard and perhaps whether advice is sought at this or a later time. A space that is held by others who really, really understand and see each other. What could this look like? A Facebook community? Having us all make hotel reservations in some remote place and just all show up one weekend? Haha, I have more ideas but not sure they’re the best. Do you have any thoughts on how this community we both seem to need might manifest?
Hello. I feel this and am here for this. I need this and want to help build this. You don't know me. I've been lurking for many years. I feel I have some capacity to contribute to building something like this. If you get to a point after finding some rest that you want to start recruiting help. Please know I am here and looking for a way to engage more.
Wishing you restful sleep. There’s so much I wish I could say, but to write it all - to examine it from every angle, consider how it might be perceived by different audiences, balance my son’s interests in the process - there’s no space for that this morning, before an appointment in an hour and six minutes and everything that needs to happen in that time. But you go through that, the writing and processing and the internal and external feedback, all the while trying to also live your life and do all the things for your family and (insert endless list of many other things).
Sending hugs, solidarity, warmth. Acknowledging the need for the community you’re discussing. Acknowledging that you’re trying to create a space that somehow draws the ire of people when it deserves support and kindness and help.
There’s a lot of isolation in my bones, the stories I carry but can’t share, that some days I find myself crying in the middle of a meeting feeling my back and bones like chalk ready to crumble. Stories of love and fear and my son and my failures and my limits and things it would take days or weeks to pour out and explain. Those are the things I wish I could talk about, explain, find community in, but there’s nowhere to go for so many reasons.
I hope you’re able to build what you’re envisioning. It’s so necessary.
I truly hope you can get more sleep soon. Long nights when I can't sleep due to worries (conscious or subconscious) are familiar. Your sleeplessness may be from another cause.
Our family's struggles differ from yours yet the isolation sounds so similar. I have some personal questions that we've need community help with for years. Unfortunately, there isn't a safe space that wouldn't either reveal too much about my child or put me at risk of advice from people who might mean well, but don't have the same view of setting my child up for lifelong self-determination and bodily autonomy. If I can help in building this safe space (unfortunately without coding skills) I would love to volunteer time.
I wish for you some peace, and sleep. I would be open to a supportive community as well. A safe space to share, and get helpful information, but without it being pushed like it's the only way. I would also be willing to help set it up. Let me know if you would be interested.
I hope that you're able to find the peace your mind and heart need so badly. Thank you for sharing and being vulnerable with us in this space. Sending lots of warmth and love and big tight hugs (if you're a hugger).
I wish you all the rest and all the peace! What a difficult place you're in, and what light you shine for our community--and the two don't harmonize all that well, always, I know. Keep planning, keep sharing as you can, and I pray you get some sleep <3
I am holding sacred space for you and yours Tiffany. I resonate with your desire to create this kind of nuanced space and your struggle with isolation. I am game for it, in any way I can be. I hope you are able to take time to rest and get good sleep. Sleep has always been a challenge for me that was exacerbated when I had kids and my oldest struggles regularly. It makes a terrible impact and can be so hard to catch up!
🤗🤗🤗🤗
To be worn down to the bone and in a dark place, yet still thinking of ways to make others feel less alone, makes you a special person. Not everyone deserves your full truth, but there are those in your life who are ready for the chance to meet you there.
I appreciate you sharing this. I can’t imagine what your experience is like (as my experience as an autistic individual and parents is very different). But - I get the struggle of trying to decide how much to share and how much to keep private. I also process things by writing (mine are mostly in a personal journal) and those writings help me feel not so alone - and sometimes help me figure out what I feel comfortable sharing. It’s an ongoing battle - and you need to do what’s right for you and your family first and foremost. But we are here to support you, no matter what you share. ❤️
I suspect I speak for more than just myself when I say that even without sharing details, those who are living this experience can fill in the blanks when it comes to what you are experiencing and feeling. You share so much that makes me feel heard and seen and I hope you know that you are heard and seen as well. Whether or not you share everything, those who know understand all too well.
Your writing has always just spoken to me, more so now. I am the mother of an autistic child and I so so want the type of community -need and pray for it ,a supportive, nonjudgmental community of people going through similar struggles who share things what are joyous, sometimes unexpectedly do, and ok to share when more challenging emotions arise, not necessarily obligating oneself to receive advice but to know that they’re being heard and perhaps whether advice is sought at this or a later time. A space that is held by others who really, really understand and see each other. What could this look like? A Facebook community? Having us all make hotel reservations in some remote place and just all show up one weekend? Haha, I have more ideas but not sure they’re the best. Do you have any thoughts on how this community we both seem to need might manifest?
Hello. I feel this and am here for this. I need this and want to help build this. You don't know me. I've been lurking for many years. I feel I have some capacity to contribute to building something like this. If you get to a point after finding some rest that you want to start recruiting help. Please know I am here and looking for a way to engage more.